As far as the walk goes, it was awesome! It came together great and we had a superb turn out. It was a wonderful experience and I can't wait for our next fun adventure with this group!!
Jan. 18, 2013-I know it has been a while since Kai's last update. He is doing the same. He is getting good at his gentle touches, even with his brother!! No new words although he seems to have mimicked uh-oh this week=] He had another hearing evaluation and his left ear seems fine but his right needs to be checked again. We are waiting to hear back from an audiologist to get a processing test done. They can actual tell if he is processing whats he is hearing and at what rate, so good things=]] He has an appointment to get refitted for new braces in feb, as well as his new ot, pt, and st re-evaluations. In April we will start the paperwork for school this fall=]] In the mean time, we are going to the child study center for a new autism screening and back to the genetics doctor in fort worth for a one year check up and possible sickle cell testing. I'll update when all these things happen=]
Dec. 13, 2012-Malakai blew my mind today! I had a neurology appointment in which I had to have nerve testing and didn't have a choice but to take the little man. He sat in a chair and watched for an hour!!!!!!!!!!! No screaming, no crying, he just sat and occupied himself and watched, it was unbelievable!!!! ♥
Dec. 11, 2012-I witnessed the sweetest thing tonight between my boys! Destin was laying on the floor crying and Kai comes over, kneels down beside him, and starts patting his back!!! This is HUGE! This means he is making a connection and understanding how is actions can affect another person!! ♥
-Kai did great at therapy today! He climbed into a swing by himself and said, "Go!" Congrats Kai, mommy loves you!
Dec. 7, 2012-We had a better week at therapy and kai started eating again today!!!!!!! We have an awesome friend that loves us enough to fly down and spend a week with us. We got a new fireplace tonight!!!!! Can't wait to get kai on this horse tomorrow!!! We are so blessed ♥
-We also got the surgery rescheduled for Dec. 19th, i'll update as that comes closer=]
Nov. 27, 2012-kai is supposed to go in for surgery at 6:30 am, and i get a call today saying our insurance wont be covering it. Um, i'm sorry, where was this phone call weeks ago???? The night before, seriously? So we are changing locations and it will be rescheduled, but its looking like it wont be until the end of december, beginning of january >=[ But on the bright side, when my boys stop and look at each other with such love and interest, and then giggle at each other, my heart truly melts. I love you boys ♥
Nov. 25, 2012-Kai did better than expected at thanksgiving! He was iffy, kind of whiny, and stuck to my side for a while, but he did alright!!! Wednesday, he goes under, so please please please keep him in your thoughts..
Nov. 16, 2012-After a little bit of a push, Malakai had a pretty good day at therapy! We couldnt get him to drink from a straw but he had a good time, followed a chart today, which I found super adorable, and with a little push said "go" in sign language! I'm still fighting with a handful of doctors to out rule the ridiculous accusations from our last doctor so kai won't be on his horse again this Saturday but all the missed sessions now are going to be made up later!!! =]]]
Nov. 13, 2012- Kai saw an ENT finally today. Due to his last traumatic experience, he wouldn't really let this doctor get a great look at his ears, but he did confirm he has a large amount of wax build up. Because of his inability to let doctors touch him or clean his ears he is going to have to be put under. In a few weeks we will go to the er, have him put to sleep, and they will thoroughly clean his ears. While he is out they will have an audiologist standing by to do a hearing test since he failed his last one. They are also going to be checking for fluid in his inner ear and if there is any, they are going to be putting tubes in. I'm a nervous wreck and the thought of my baby being put under scares me to death, but at least he is getting the help he needs and maybe this will help him start talking!! =]]]
Nov. 11, 2012- Due to some paperwork issues, Kai was unable to ride but Kai had a blast yesterday seeing his horse and playing with his friend Hunter=]] They boys had a superb day playing with dad today while mom had a great day at work!! Malakai is not only petting the animals so nicely but when his brother dropped something today, he picked it up and handed it back to him!!!!!! Destin is officially petting the animals also and can say, mama, dada, dog, down, and done=]]]
Nov. 9, 2012- After Kai's OT recommended equine therapy, I started looking into it. The Family Readiness Center made me aware today that they had four spots for a child to receive four days of equine therapy fr
ee and I was being given the chance but I had to have the paperwork in that day. Seeing as how we already had a doctors appt we could have the paperwork filled out that day so I took it with to the doctor. After checking his ears and not being able to see due to wax build up, 2 adults (with full body weight) pinned my autistic 2 year old to the table while they scraped out his ears until they bled. I have never, ever, ever heard him cry or see him shake the way I did today. It was heart wrenching. After he calmed down, I asked the doctor about the paperwork, and......he REFUSED to fill it out!!! Why? Apparently my son isn't mentally stable enough to be around horses. Here's what I think, you took a child with a sensory processing disorder, pinned him to a table, with probably too much force, scared him half to death, and scraped his ears until they bled...I would have cried too!!!! My son is absolutely mentally sound and stable!!!! I will find a way for my son to get what he needs. Mommy will prevail!
-To those who saw my status about Kai not getting equine therapy...i called the Legacy Complex (where the therapy would be held) and explained my situation and expressed my heart break over the situation. She gave me the opportunity to bring Kai by today and he LOVED it!! She has a helmet that fits (which was unexpected), he picked a horse that took really well to him, and he even rode a little!! He looked like such a cute little cowboy! I'm one happy momma whose son starts his equine therapy sessions this saturday=]]]
-Malakai was actually petting a dog at the Legacy Complex today, didnt get upset when the dog was following/hearding him, and even pet his horse!!!! He usually just ignores or hits our pup, so seeing him be so gentle with an animal that is strange to him, made my heart just melt=]
-When I took the boys to the doctor this week, there was a woman sitting next to me explaining that she couldnt understand why I needed a stroller for my two kids because she did it on her own without one. This frustrated me because I felt she didn't understand what I go through and was judging my skill and strength as a parent. I also was frustrated because I wan't to point to her own 2, grown children bouncing off the walls and fighting, and say "That right there, is why I have a stroller". I already wasn't a fan of this women. She then made a phone call where she obnoxiously expressed how she has a job working with special needs children for 6 hours a day and everyday she just yells at them and questions if she can just leave them to sit there because no one would know. I was soo unbelievably disgusted and now i'm scared for kai to start school in august=[ I just don't understand how someone could do this to a child, why would you take a job like that if you can't handle it or don't have a caring bone in your body? Why would you say stuff like that, out loud, where there are a room full of parents around you? I wanted to know where she worked just to be sure my kids never attended there!! It's people like this that make a mothers life 10x harder when she was already on the edge.